Our Story
Epilepsy is not a curse
In the words of our founder
The Diagnosis
As a teenager, after several unprovoked seizures, I was diagnosed with epilepsy — one of the hardest pieces of news my family and I had ever faced, especially with no history of epilepsy in our family before me. I was at the prime of my life, the first girl from our small village to join a National School.
The Label
Almost overnight, I stopped being known as the smartest girl and became known instead as "the girl with epileptic fits."
The Struggle
The stigma and marginalization I faced, first as a teenager and later as an adult, led me into depression. That experience is why I know stigma is real, and why I believe so strongly in the need for a voice to speak out against it.
Finding Support
I overcame it only through an effective support system of family and friends who chose to stand with me rather than apart from me.
A New Chapter
Every moment is precious and should be seized. Join us as we work toward ending the stigma surrounding epilepsy in Kenya. If you'd like to understand more about the condition itself, our epilepsy education resources cover what it is, first aid, and treatment — and our initiatives page shows how that understanding turns into action on the ground.
Join the Movement