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Guides & Toolkits
Plain-language epilepsy education, straight from our own team — what it is, what causes it, how to respond to a seizure, and how to help someone manage it long-term.
Articles & Stories
Uplifting blog posts and first-person stories from people living with epilepsy, caregivers, and advocates — honest, hopeful, and grounded in real experience.
- "What My Diagnosis Taught Me About Hope"Personal Story Read More →
- Five Ways to Support a Loved OneArticle Read More →
- A Caregiver's Journal, One Year LaterPersonal Story Read More →
Support Links
Trusted external organizations for mental health, wellness, and advocacy — vetted resources for when you need support beyond our own community.
- Epilepsy FoundationNational Resource & Helpline Visit Site ↗
- NAMI (National Alliance on Mental Illness)Mental Health Helpline & Support Visit Site ↗
- 988 Suicide & Crisis Lifeline24/7 Crisis Support Visit Site ↗
Multimedia
Videos, infographics, and podcast episodes that make awareness easy to absorb and easy to share — for visual and audio learners alike.
Learn
Understanding Epilepsy
Fear, misunderstanding, and stigma have surrounded epilepsy for centuries. The best way we've found to push back against that is simple, accurate information — so that's what this section is. You can also read our founder's own story of living with epilepsy, or see how this understanding shapes our advocacy initiatives.
50M+
People affected worldwide
2+
Unprovoked seizures needed for an epilepsy diagnosis
10%
Of people worldwide will have a seizure in their lifetime
4,000 BC
How far back written records of epilepsy — and its stigma — go
What Is Epilepsy?
According to the World Health Organization, epilepsy is one of the world's oldest recognized conditions, with written records dating back to 4000 BC. Fear, misunderstanding, discrimination, and social stigma have surrounded it for centuries — and that stigma continues in many countries today, affecting the quality of life of people with the condition and their families.
It's a chronic, noncommunicable disease of the brain that affects around 50 million people worldwide. It's characterized by recurrent seizures — brief episodes of involuntary movement that may involve part of the body (partial) or the entire body (generalized), sometimes with loss of consciousness or control of bowel or bladder function.
Seizures happen when there's excessive electrical activity in a group of brain cells. They can range from the briefest lapse of attention or a muscle jerk to severe, prolonged convulsions, and can vary in frequency from less than once a year to several times a day.
One seizure does not mean epilepsy — up to 10% of people worldwide have a seizure at some point in their life. Epilepsy is defined specifically as having two or more unprovoked seizures.
Types of Epilepsy
According to WebMD, there are four major types of epilepsy:
1. Generalized epilepsy has two basic kinds of seizures. Generalized motor seizures (formerly "grand mal") cause the body to move in ways you can't control — muscles stiffen and jerk, and consciousness is lost. Generalized non-motor (absence) seizures look like stopping mid-task and staring into space, sometimes with repeated small movements like lip-smacking — it can look like the person "isn't really there."
2. Focal epilepsy (formerly "partial seizures") develops in one area or network of brain cells on one side of the brain. There are four categories: focal aware seizures (you know what's happening), focal impaired awareness seizures (confusion or no memory of it), focal motor seizures (twitching, spasms, or movement), and focal non-motor seizures (no movement, but changes in feeling or thought — intense emotion, a racing heart, goosebumps, or waves of heat or cold).
3. Generalized and focal epilepsy — some people experience both types.
4. Unknown if generalized or focal — sometimes doctors are certain it's epilepsy but can't yet tell which type, often because no one witnessed the seizure or test results aren't conclusive.
Causes of Epilepsy
- Some forms of epilepsy have no identifiable cause — seizures simply start.
- Head injuries, such as from an accident or a fight.
- Diseases like cerebral malaria, meningitis, and measles, which can cause brain damage.
- Growths in the brain, such as a tumor.
- Substance abuse, including cocaine, alcohol, and bhang.
- Prolonged lack of oxygen, which can occur during a long or difficult labour and birth.
First Aid
Witnessing a seizure for the first time can be frightening — the most important thing is to stay calm. Each type of seizure is different, so the right response varies, but keeping the person safe is a shared responsibility between anyone nearby and the person themselves.
For a Grand Mal seizure (the most common type):
- Don't run away — stay calm and stay with the person.
- Clear away anything that could cause harm: stones, hot water, buckets, furniture.
- Do not restrain the person, and never put anything in their mouth — this can cause choking, which can be life-threatening.
- Protect their head with something soft, like a folded jacket or pillow. If a tie or top button is tight at the neck, loosen it gently.
- Once the seizure stops, check their breathing, and if it's okay, turn them onto their side.
- Once they respond, help them sit up comfortably and calmly explain what happened. If you don't know them, gently ask for details so you can contact someone close to them.
Call for emergency help if:
- They're not breathing, or breathing is laboured
- They've been injured
- The seizure lasts more than five minutes
- It's their first seizure
- They take more than 10 minutes to respond afterward
- Seizures repeat one after another
- They have an underlying condition like heart disease, diabetes, or are pregnant
If you feel a seizure coming on yourself (an "aura"): sit or lie down somewhere safe, loosen any tight clothing, and let someone nearby know what's happening.
Prevention & Treatment
Prevention — the old adage holds true here: prevention is better than cure.
- Take medication faithfully, and never stop without a doctor's guidance.
- Avoid unprescribed or illegal drugs — talk to your doctor if substance use is a challenge.
- Avoid alcohol.
- Get enough sleep, and manage stress.
- Exercise faithfully, and take time to relax.
- Keep a consistent meal schedule, especially important for those managing diabetes too.
- Avoid flashing lights if you have photosensitive epilepsy.
- Protect against head injury — e.g. wearing a helmet on a motorbike or bicycle.
- For young children, manage fevers promptly.
Treatment — always guided by a medical professional:
- See a doctor after more than one seizure — ideally a neurologist. In Kenya, organizations like KAWE (Kenya Association for the Welfare of People with Epilepsy) offer affordable clinics on specific days.
- Anti-epileptic drugs (AEDs), the most common treatment.
- Surgery, only on a neurologist's advice.
- A small electrical device implanted to help reduce seizures, again only on specialist advice.
- A special ketogenic diet, which can help control seizures for some people.
Common Questions
Epilepsy FAQ
Quick, honest answers to what people ask us most. For the fuller picture, the topics above cover each of these in more depth.
Is epilepsy contagious?
No. Epilepsy cannot be caught from another person through any kind of contact. It's a condition of the brain, not an infection — this is one of the most persistent myths behind the stigma we're working to end.
Can someone swallow their tongue during a seizure?
No — this is physically impossible, and it's exactly why you should never put anything in someone's mouth during a seizure. Doing so is far more likely to cause injury or choking than to help. See our First Aid guide for what actually helps.
Should I hold someone down during a seizure?
No. Restraining someone during a seizure doesn't stop it and can cause injury to both of you. The safest thing you can do is clear the area of anything harmful, protect their head, and stay with them until it passes.
Can epilepsy be cured?
It depends on the person and the cause. Some children outgrow certain childhood epilepsy syndromes, and many people become seizure-free with the right medication. For others, epilepsy is a lifelong condition that's managed rather than cured — but "managed well" often means living an entirely full, active life.
Can people with epilepsy drive?
Often, yes — but it depends on local licensing rules and how well-controlled someone's seizures are. Many places require a seizure-free period before a license is issued or renewed. If this applies to you, it's worth checking with both your doctor and your local licensing authority.
Can people with epilepsy live a normal life?
Yes. With the right treatment, support, and understanding from the people around them, most people with epilepsy work, study, raise families, and pursue whatever they're drawn to — the same as anyone else. This is the whole reason Seize the Moment Now exists: the condition itself is manageable; it's the stigma that does the most damage.
Built To Be Accessible
Every resource here is offered free, in plain language, and in formats suited to different needs — screen-reader-friendly PDFs, captioned video, and audio for those who'd rather listen than read. Imagery throughout stays warm and inclusive, echoing the ribbon's own colors and the encouragement at the heart of this community.